About jillwilson.com
I have owned jillwilson.com for a zillion years. (Al Gore called me right after he invented the Internet and said, "jillwilson.com -- its hot! Hot! HOT! Better buy now-- it’s going to go fast!”)
I always thought it would be nice to have a website if I ever wrote a book or became a rock star. I never thought, "Wow, this will come in handy if I get this incurable cancer and start to feel isolated from every one except John Stewart, David Letterman and that depressing Fisher family on HBO."
But that is what happened. In September 2004 I was diagnosed with Inflammatory Breast Cancer or IBC. IBC differs from other breast cancers in that it has already spread to the lymphatic system by the time it is diagnosed, so patients are never told they are cured or that the cancer is in remission. The best IBCers can hope for is membership in the oh-so-exclusive CLUB NED, which means no evidence of disease can be detected. The disease is so aggressive that more than half of patients die within five years — compared with fewer than 14 percent of all breast-cancer patients. BUT THE GOOD NEWS IS (I know you were starting to wonder) that women are living longer now with IBC (10 years ago only 2% lived longer than 24 months). And I have a great team of doctors who are being very aggressive with my treatment, so I feel sure I will be joining CLUB NED soon.
In the meantime, I need this web site not just to keep family and friends up to date on my treatment. . . but hopefully to reclaim some of my social life -- even if it for now needs to be "virtual." I am lucky that my family lives nearby and are wonderful support, but I tend to keep to myself these days and have gotten bad about returning emails and phone calls. Some days I am just too tired. Other days I just don't have any good news and don't feel like sharing.
The problem with this is most normal people will not keep communicating with someone who doesn't reciprocate. So, with the exception of a few persistent stalker type friends, I find myself royally out of the loop with, well, everything.
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click here to email me directly
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No Jiffy feet allowed at radiation
Originally, this site was going to be a way to update folks about my cancer treatment. The problem with that was my treatment left me feeling, uh, crappy? So now that almost a year has passed and I am nearing the end of this chapter of treatment, I feel some motivation to get this jill-liteful journey documented. I am going to try and post something each day at my blog site (link below) and that is a good place for you to comment back to me as I have not figured out why these posting areas on my website are not working yet. By the way, my sister Krista told me no one would know what I meant by the term JIFFY FEET in the picture of me above. I think you all can figure it out, yes? no? If you need a jill-interpreter, go to the JILLUCIDATE page on this site.
Read or talk back at jillabuster blog
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